disorders being researched, maybe they could get up to an additional $1-2 million dollars. Although that may not be enough, but it was a little bit more than what they started off with. I never heard of the term orphan drugs until I was given this paper to write. I’ll bet you if you asked people (not including medical doctors) “What an orphan drug is?” they would probably look at you like you had 3 heads or something. NORD is struggling a lot with the $ factor as I said in the beginning. When I called NORD and when I received information from NORD, in both cases they asked me if I wanted to donate any money. Granted that orphan diseases only effect less than 50,000 people in the United States, but they are 50,000 lives that you might know, or one of your friends may know. To think that the only chance that one of the 50,000 people have to live is with an orphan drug that either cost to much, or it was abandoned because NORD or the FDA didn’t have the money to finish research on the disease to make a drug. NORD is a private based company, that hardly gets any money from the government, and relies mostly on grants from colleges and universities for help. You know how you hear people dying every single day because of organ donors couldn’t be found. It’s the same thing over here. People are dying for stupid reasons, because our great government couldn’t give an organization that has already made drugs for orphan diseases such as Parkinson’s disease a few million dollars but would rather spend it on a brand spanking new jet fighter for a war that will never happen. Even if a war was to happen, two words NUCLEAR WARHEAD. Can’t stop them from coming, and if people really wanted all of us dead it will happen. How to apply for a designation as an Orphan ProductA. A sponsor that submits a request for an orphan drug designation of a drug for a specified rare disease or condition shall submit ...
